[{"data":1,"prerenderedAt":344},["ShallowReactive",2],{"slug-i-got-my-whole-genome-sequenced-heres-what-i-learned":3},{"post":4,"relatedPosts":210,"relatedBooks":343},{"id":5,"date":6,"date_gmt":7,"guid":8,"modified":10,"modified_gmt":11,"slug":12,"status":13,"type":14,"link":15,"title":16,"content":18,"excerpt":21,"author":23,"featured_media":24,"comment_status":25,"ping_status":25,"sticky":26,"template":27,"format":28,"meta":29,"categories":30,"tags":34,"project_category":52,"contact_email_category":53,"yst_prominent_words":54,"class_list":75,"better_featured_image":102,"acf":145,"yoast_meta":155,"_links":157},22360,"2024-07-29T13:54:53","2024-07-29T11:54:53",{"rendered":9},"https:\u002F\u002Fmedicalfuturist.com\u002F","2024-07-29T12:58:29","2024-07-29T10:58:29","i-got-my-whole-genome-sequenced-heres-what-i-learned","publish","post","https:\u002F\u002Fmedicalfuturist.com\u002Fi-got-my-whole-genome-sequenced-heres-what-i-learned",{"rendered":17},"I Got My Whole Genome Sequenced. Here’s What I Learned.",{"rendered":19,"protected":20},"\n\u003Cp class=\"has-text-align-left\">Dante Labs sent me their Full DNA whole genome sequencing package, and I went through a roller-coaster of feelings: I was excited to know every secret of my DNA, but I was afraid of getting to know my hereditary cancer risks and worried what else I might find. As in my case, (scientific) curiosity usually overrides fear, I jumped into the unknown and I’m eager to share my results here.\u003C\u002Fp>\n\n\n\u003Cp>\u003Ciframe loading=\"lazy\" title=\"What happens when I get my genome sequenced - The Medical Futurist\" width=\"640\" height=\"360\" src=\"https:\u002F\u002Fwww.youtube.com\u002Fembed\u002FRrTzi6C05lw?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen>\u003C\u002Fiframe>\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">\u003C\u002Fp>\n\n\n\n\u003C!--more-->\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>Whole genome sequencing is available to anyone. So what?\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp class=\"has-text-align-left\">The human genome is the blueprint for building a person. When the \u003Ca href=\"https:\u002F\u002Fwww.genome.gov\u002F12011238\u002Fan-overview-of-the-human-genome-project\u002F\">Human Genome Project\u003C\u002Fa> was completed in 2006, and the DNA double spiral uncovered its secrets for the very first time, scientists agreed that it’s just as a revolutionary moment for mankind as Neil Armstrong stepping on the Moon. \u003Ca href=\"https:\u002F\u002Fghr.nlm.nih.gov\u002Fprimer\u002Fhgp\u002Fdescription\">Researchers said\u003C\u002Fa> that learning about the functions of genes and proteins will have a major impact in the fields of medicine, biotechnology, and life sciences.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">Although \u003Cstrong>the technical conditions, \u003C\u002Fstrong>\u003Cstrong>\u003Ca href=\"https:\u002F\u002Fpdfs.semanticscholar.org\u002F0e38\u002F7bd00952c8450deefcdbcdebf5c946c20f54.pdf\">the time and the cost of sequencing genomes were reduced by a factor of 1 million in less than 10 years\u003C\u002Fa>\u003C\u002Fstrong>\u003Cstrong>, the revolution lags behind. Before you start worrying, I can assure you: it will come\u003C\u002Fstrong>. When the price of genome sequencing reaches that of a blood test – it is already dropping below $1000 – and the data analysis will happen according to layers (and special pricing according to the various batches of information!), we will see how many areas of our lives genetic information impacts. \u003Cstrong>It affects pharmaceutical decisions, lifestyle and dietary choices, disease prevention plans, the human aging process and life expectancy in general.\u003C\u002Fstrong>\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">However, the latter has been questioned over time for the advantage of environmental factors. In the 1990s, scientists estimated that genetics has a 20 percent say in the human life expectancy, however, it was already \u003Ca href=\"https:\u002F\u002Fghr.nlm.nih.gov\u002Fprimer\u002Fhgp\u002Fdescription\">reduced to 15 percent in a study conducted in 2011\u003C\u002Fa>, while \u003Ca href=\"http:\u002F\u002Fscience.sciencemag.org\u002Fcontent\u002F360\u002F6385\u002F171\">a research published this year also concluded\u003C\u002Fa> that human relationships and the environment, in general, have an overwhelmingly more dominant effect on the lifespan of individuals than genetic inheritance.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">Still, bearing all the limitations in mind, I was absolutely over the Moon that \u003Ca href=\"https:\u002F\u002Fwww.dantelabs.com\">Dante Labs\u003C\u002Fa> sent me their \u003Ca href=\"https:\u002F\u002Fwww.dantelabs.com\u002Fproducts\u002Fwhole-genome-sequencing\">Full DNA whole genome sequencing package\u003C\u002Fa>.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image alignnone wp-image-22361 size-full\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"585\" src=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FGenetic-Testing.jpg\" alt=\"\" class=\"wp-image-22361\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FGenetic-Testing.jpg 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FGenetic-Testing-768x516.jpg 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FGenetic-Testing-512x344.jpg 512w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003Cfigcaption class=\"wp-element-caption\">Source: www.fortune.com\u003C\u002Ffigcaption>\u003C\u002Ffigure>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>Expectations as high as the Mount Everest\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp class=\"has-text-align-left\">Over the years, I have already gathered a lot of experience regarding genetic testing – with Navigenics, Pathway Genomics, My Gentle Labs, Futura Genetics, just to name a few. I have learned what medication would have a side effect on me; what major conditions I’m at risk for; why I have certain features such as the inability to run marathons and what I can expect from the future. Our team even reviewed \u003Ca href=\"https:\u002F\u002Fmedicalfuturist.com\u002Fhow-does-a-brca-genetic-test-work\">the BRCA test produced by Dante Labs\u003C\u002Fa>.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">However, the difference between genetic tests and whole genome sequencing is like that of a seat on the bus or having your own car. With the first, your route is kinda determined and you only have one seat – it’s partial. With a car, you have infinite chances where to go and you own the entire vehicle. The majority of direct-to-consumer genetic tests determine various single nucleotide polymorphisms (or SNPs). These can \u003Ca href=\"https:\u002F\u002Fghr.nlm.nih.gov\u002Fprimer\u002Fgenomicresearch\u002Fsnp\">act as biological markers, helping scientists locate genes that are associated with a disease.\u003C\u002Fa> When SNPs occur within a gene or in a regulatory region near a gene, they may play a more direct role in disease by affecting the gene’s function. In the end, however, SNPs are only indicators of health risks, and a great deal of information remains hidden in the genome.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">Thus, I expected that Dante Labs, which is working with leading genetic labs in the United States, Europe, and Asia; and partnered with Harvard University, Amazon, the Global Alliance for Genomics & Health or Privacy Shield Framework, will offer me \u003Cstrong>a crystal-clear overview of my chances for a healthy life. I wished to see what conditions I could prevent, what medications I should avoid – and what does my body carry in general. \u003C\u002Fstrong>\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">\u003Cstrong>As the DNA package contains a hereditary cancer report with risks, e.g. for \u003C\u002Fstrong>\u003Cstrong>\u003Ca href=\"https:\u002F\u002Fwww.dantelabs.com\u002Fproducts\u002Fwhole-genome-sequencing\">colorectal or prostate cancer\u003C\u002Fa>\u003C\u002Fstrong>\u003Cstrong>, I was nervous for weeks what they might find\u003C\u002Fstrong>. However, I do believe that \u003Ca href=\"https:\u002F\u002Fwww.dantelabs.com\u002Fproducts\u002Fwhole-genome-sequencing\">you have to think proactively and that it’s better to know the risks\u003C\u002Fa> and to ensure preventive measures than bury your head in the sand, so after a while I let my fears go and started to become rather curious what I will know. Perhaps naively, I had the sense that I can add a significant chunk of new information to the familial health landscape – since I can uncover such genetic health risks as no one ever before.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"653\" src=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDante-Labs-Kit.jpg\" alt=\"Dante Labs DNA package\" class=\"wp-image-22397\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDante-Labs-Kit.jpg 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDante-Labs-Kit-768x576.jpg 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDante-Labs-Kit-512x384.jpg 512w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003C\u002Ffigure>\n\n\n\n\u003Cp class=\"has-text-align-left\">\u003C\u002Fp>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>The sampling process was as familiar as stampedes around Black Friday\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp class=\"has-text-align-left\">There is a commonly known sampling process when it comes to genetic tests, and it is almost the same in the case of the Dante Labs whole genome sequencing package. Same old, same old. Just as you would expect crazy crowds on Black Friday in shopping malls, you can prepare for a saliva test here.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">You cannot eat, drink, smoke or chew gum for half an hour before you do the sampling, and then you are instructed to give some saliva into a tube. You screw on the cap, which will release the DNA preserving liquid, you mix the materials and then seal the container. As it is a biological sample, you have some administrative work to do, but there was truly no difference compared to other tests. Actually, the process is so standardized by now that you can \u003Ca href=\"https:\u002F\u002Fwww.dnagenotek.com\u002FROW\u002Fproducts\u002Fcollection-human\u002Foragene-dna\u002F500-series\u002FOG-500.html\">buy a kit online to collect “superior samples” at home\u003C\u002Fa>. Oh, capitalism, you have an investor for everything.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\">\u003Cdiv class=\"wp-block-embed__wrapper\">\n\u003Ciframe loading=\"lazy\" title=\"Taking a Dante Labs Full DNA Test - The Medical Futurist\" width=\"640\" height=\"360\" src=\"https:\u002F\u002Fwww.youtube.com\u002Fembed\u002FrP42QBhgmHo?start=18&feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen>\u003C\u002Fiframe>\n\u003C\u002Fdiv>\u003C\u002Ffigure>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>The waiting period was as nerve-racking as filling the time until the final season of GoT\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp class=\"has-text-align-left\">Two months. Eight weeks to be precise. That’s \u003Ca href=\"https:\u002F\u002Fwww.pedigree.com\u002Fdog-care\u002Fdog-age-calculator\">two years for an Anatolian shepherd dog\u003C\u002Fa>! \u003Ca href=\"https:\u002F\u002Ffromtone.com\u002Fchinas-ghost-cities\u002F\">China is even building cities in the size of Rome\u003C\u002Fa> every two months for the last decade… so while I had to wait for the results, Chinese construction workers established a new (ghost) city somewhere in the mainland. Nevertheless, the situation was not that miserable, as I could follow it on the online platform whether my sample arrived, where the processing stands and what I could expect.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">Thus, I waited. As you could imagine, that’s NOT among my favorite activities. What could I do to pass the time? I went to my primary care physician to tell her that I expect such a sample (side note: she hasn’t gone through the results yet, I’ll let you know as soon as she does so) and asked her to help me in interpreting the results. Besides, I also checked what kind of reports they will send me. I was expecting a thorough \u003Ca href=\"https:\u002F\u002Fwww.dantelabs.com\u002Fproducts\u002Fwhole-genome-sequencing\">health and wellness report and an overview of my risks regarding genetic diseases\u003C\u002Fa>.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image alignnone size-full wp-image-22364\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"532\" src=\"https:\u002F\u002F1712507217.rsc.cdn77.org\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDNA-Sequencing.jpg\" alt=\"whole genome sequencing\" class=\"wp-image-22364\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDNA-Sequencing.jpg 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDNA-Sequencing-768x470.jpg 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDNA-Sequencing-512x313.jpg 512w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003Cfigcaption class=\"wp-element-caption\">Source: www.dnatestingchoice.com\u003C\u002Ffigcaption>\u003C\u002Ffigure>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>Joy and happiness: the results arrived!\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp class=\"has-text-align-left\">Finally, \u003Cstrong>my report of altogether 163 pages and my raw data was available. Dante Labs sequenced all the 3,095,677,412 base pairs that I possess and gave me a thorough overview of myself. That’s fascinating and weird at the same time.\u003C\u002Fstrong>\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">At first, I was baffled by the size of the document and I was afraid that I’ll have \u003Ca href=\"https:\u002F\u002Fmedicalfuturist.com\u002Fhow-to-overcome-being-cyberchondriac\">cyberchondriac\u003C\u002Fa> tendencies. However, the report supports interpretation with several “crutches”: they emphasize the likelihood of the risks, they include various illustrations and scales to visualize the results, and they also divide the outcome based on the prevalence of evidence. Thus, there is a difference between having a risk based on one study or fifty – more evidence certainly gives more weight to a risk and it helps the tester to put the results into perspective.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">Bearing these in mind, I went through the report. Although I already knew some of the results from previous genetic tests, the majority of the findings was entirely new for me, and I understood a lot more about myself. In some instances, I even found the explanation for my inclination towards activities. For example, I read sentences like your genes indicate you are likely to excel at power-based sports and training, but less likely to be good at endurance sporting activities. For all my life, I have been aware of the fact that I’m not a long-distance runner, but now also understand why I had the tendency to choose sprints and why I’m better at running fast for short distances. Nevertheless, on the same page, I was also glad to read that I don’t have sickle cell trait or that I’m not predisposed to an abnormal amount of exercise-induced fatigue.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">I was also informed that I have a moderate risk for melanoma, which I already knew from previous genetic tests. They informed me that tanning beds or sunburns are highly avoidable for me – although I did that pretty much for my entire life. Another previously known fact about myself was my predisposition to thrombosis. They detailed that I have a Factor V Leiden mutation and a Factor V R2 mutation. The report said that means I have a slightly elevated risk for abnormal blood clots forming in my veins.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"331\" src=\"https:\u002F\u002F1712507217.rsc.cdn77.org\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FWhole-Genome-Sequencing-Test-Results.png\" alt=\"whole genome sequencing\" class=\"wp-image-22362\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FWhole-Genome-Sequencing-Test-Results.png 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FWhole-Genome-Sequencing-Test-Results-768x292.png 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FWhole-Genome-Sequencing-Test-Results-512x195.png 512w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003C\u002Ffigure>\n\n\n\n\u003Cp class=\"has-text-align-left\">\u003C\u002Fp>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>Pharmacogenomic findings and the need for advice\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp class=\"has-text-align-left\">The report had a special section devoted to \u003Ca href=\"https:\u002F\u002Fwww.ncbi.nlm.nih.gov\u002Fpmc\u002Farticles\u002FPMC2014592\u002F\">pharmacogenomics\u003C\u002Fa>, which deals with the variability in drug response due to the genetic code. It argues that despite general sentiments, medications do not have the same effect on people. Some doctors already highly \u003Ca href=\"https:\u002F\u002Fwww.pharmgkb.org\u002Fguideline\u002FPA166104949\">recommend genetic testing before any prescription of, e.g.\u003C\u002Fa> Warfarin, a type of anti-blood clotting drug takes place. Dante Labs also tests for Warfarin, and it turned out I have a slight resistance towards that.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">Nevertheless, I received information about how my body metabolizes more than a hundred drugs, which is incredibly useful. For example, my cholesterol level is usually higher than the reference value, however, I would definitely have severe side effects if I took prescription pills for high levels of cholesterol. That means a risk for cardiomyopathy, for example. Moreover, the test revealed that I have a risk to develop lactose intolerance as an adult – and I already suspected that, and now the report confirmed it.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">However, I had no idea before that I have a high risk for knee arthritis and moderate ones for hip and wrist arthritis, so I should rather not gain weight during the years and I should not wear high heels quite often. That latter came as a real shocker. But jokes aside, I’m glad that I know about these risks alongside with the risk for atrial fibrillation, cardiovascular disease, colorectal cancer or brain aneurysm.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">\u003Cstrong>All-in-all, I was very curious and fascinated to read the overview. I also thought that as a geneticist, I will not have any problem even with the most stringent medical explanation. However, when I went through the entire report, I had to face the truth: I need a genetic counselor to make the right conclusions\u003C\u002Fstrong>. So I turned to Dante Labs and my primary care physician.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"567\" src=\"https:\u002F\u002F1712507217.rsc.cdn77.org\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FPharmacogenomic-results.png\" alt=\"whole genome sequencing\" class=\"wp-image-22399\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FPharmacogenomic-results.png 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FPharmacogenomic-results-768x500.png 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FPharmacogenomic-results-512x334.png 512w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003C\u002Ffigure>\n\n\n\n\u003Cp class=\"has-text-align-left\">\u003C\u002Fp>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>Pieces of advice from a genetic counselor\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp class=\"has-text-align-left\">In the quest to understand my genetic code, I asked Dante Labs whether they have a genetic counselor. It turned out they cooperate with the \u003Ca href=\"https:\u002F\u002Fwww.dnafeed.com\u002F\">DNAfeed.com\u003C\u002Fa> team, but they don’t have an advisor on their own. When you go to the site, you provide your e-mail address and upload the raw data, then a smart algorithm analyzes it and compares it to the latest scientific findings, and in the end, you have the chance to talk your results through with a specialist.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">\u003Cstrong>I had \u003Ca href=\"https:\u002F\u002Fmedicalfuturist.com\u002Fthe-genomic-data-challenges-of-the-future\">many privacy concerns about whether or not I should share my genomic information\u003C\u002Fa>\u003C\u002Fstrong>\u003Cstrong> with the team. I started to do my research, and it turned out that the service is HIPAA-compliant, information sharing is protected and encrypted, so I took a deep breath and uploaded my sample\u003C\u002Fstrong>. And then I asked. Tons of questions.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">I was curious whether I had any significant risk that I should definitely be aware of and take into consideration when making lifestyle choices. I wanted to know whether I had certain risks against which I could individually act or whether I possess a genetic factor that I should always keep in the back of my mind.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">The clinician calmed me by saying I don’t have any mutations in any of the known genes that may substantially increase my risk of hereditary cancer, for example, BRCA. The counselor mentioned the slightly increased risks for melanoma and colorectal cancer, but also explained the steps to take to prevent them: proper skin protection from sun exposure and consider periodic skin checks with a doctor; getting the recommended screening with colonoscopies to catch any potential tumors early.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">Moreover, the physician explained that I have a Factor V Leiden mutation, which is a specific gene mutation that results in thrombophilia. That gives me a slightly increased tendency to form abnormal blood clots that can block blood vessels. Nevertheless, he also added the much-needed context: this is a common mutation that 3-8% of people may have, and most people with this mutation never develop clots.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">That’s the primary reason why I decided for genetic counseling. You need to hear from a clinician that if you have a gene mutation or SNP, how likely it is going to cause you any problems later on and how likely its prevalence is in the population. In the case of thrombosis risk, I will also do everything to avoid it: I do what it takes not to gain weight and I regularly do sports.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image alignnone size-full wp-image-22367\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"580\" src=\"https:\u002F\u002F1712507217.rsc.cdn77.org\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FGenetic-Testing-Counseling.jpg\" alt=\"whole genome sequencing\" class=\"wp-image-22367\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FGenetic-Testing-Counseling.jpg 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FGenetic-Testing-Counseling-768x512.jpg 768w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003Cfigcaption class=\"wp-element-caption\">Source: www.healthblog.uofmhealth.org\u003C\u002Ffigcaption>\u003C\u002Ffigure>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>The digital afterlife of my DNA data\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp class=\"has-text-align-left\">I am content that all \u003Cstrong>these pieces of valuable information are available for me – and my future self. However, the data set is also at the disposal of the company – and many people are afraid to have a genomic test mainly due to concerns of misuse of personal data. So I asked Dante Labs what happens with my sample and DNA after the testing procedure\u003C\u002Fstrong>. They told me they discard the saliva samples after the delivery of the results. However, customers can ask the enterprise to keep the DNA if they wish to do that.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">Dante Labs stores the genetic reports in their database so that customers can always have access to them. On the other hand, they don’t share data with friends, family, healthcare professionals or other individuals – that’s up to the customers.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">As the majority of genetic testing companies, Dante Labs also asks everyone whether they consent to the use of data for scientific research. Recently, it turned out that \u003Ca href=\"https:\u002F\u002Fmedicalfuturist.com\u002Fthe-genomic-data-challenges-of-the-future\">pharma companies invest heavily in direct-to-consumer genetic testing firms\u003C\u002Fa>, thus I inquired about the nature of research done by Dante Labs. They told me that they run internal research for advancing science in the field of precision medicine. However, if the customer wants to opt-out, there’s an option for that, too.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image alignnone size-full wp-image-22368\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"455\" src=\"https:\u002F\u002F1712507217.rsc.cdn77.org\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDNA-Sample.png\" alt=\"whole genome sequencing\" class=\"wp-image-22368\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDNA-Sample.png 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDNA-Sample-768x402.png 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDNA-Sample-512x268.png 512w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003Cfigcaption class=\"wp-element-caption\">Source: www.futurism.com\u003C\u002Ffigcaption>\u003C\u002Ffigure>\n\n\n\n\u003Cp class=\"has-text-align-left\">For me, the whole genome sequencing report turned out to be liberating on the one hand and gave me much to process on the other side. After I learned all the risks that my body carries for the future, I went to my primary care physician to discuss how I’m going to fight the battles with my genes. As she has my entire medical history, she is the most appropriate medical professional to discuss the way forward for me. She suggested yearly dermatological exams, and she also drew my attention to the fact that if I ever have to go to the hospital and lay in bed for 1-2 days, I have to receive anticoagulants. As she was also concerned about the colorectal cancer risk, she promised me to go after more relevant studies and will get back to me soon.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">While the information encoded in our DNA is unalterable (\u003Ca href=\"https:\u002F\u002Fmedicalfuturist.com\u002Fwhat-could-crisprcas9-do-tomorrow\">for the moment, at least\u003C\u002Fa>), the environmental factors depend pretty much on us, humans. And as scientific research proved, that has a lot more impact on a person’s life expectancy, for example, than genetics.\u003C\u002Fp>\n\n\n\n\u003Cp class=\"has-text-align-left\">Thus, as a next step, I will pack up my health sensors and trackers, go to the specialists and make a plan on how to avoid my genetic risks. Fortunately, I’m not alone in my fight – and you are also aided. By technology and great medical professionals. That’s why I advise you to have your whole genome sequenced. I already ordered two further kits – one for my wife and one for my daughter, Mira, too. So, you can prepare for your own future in time – to get from chance to choice.\u003C\u002Fp>\n\n\n\n\u003Cp>\u003Cstrong>A 2024 update\u003C\u002Fstrong>: Since this article, I’ve received a lot of e-mails and comments from other users of this service complaining about customer service and how much they had to wait for their results. I didn’t have the same experience but I wanted to mention it to provide an objective review.\u003C\u002Fp>\n\n\n\n\u003Cp>Here are the pros & cons of  Dante Labs’ Full DNA Whole Genome Sequencing:  \u003C\u002Fp>\n\n\n\u003Cdiv class=\"wp-block-image\">\n\u003Cfigure class=\"alignleft\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"870\" src=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDante-Labs_Whole-Genome-Sequencing.png\" alt=\" Dante Labs Full DNA Whole Genome Sequencing\" class=\"wp-image-22405\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDante-Labs_Whole-Genome-Sequencing.png 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDante-Labs_Whole-Genome-Sequencing-768x768.png 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDante-Labs_Whole-Genome-Sequencing-150x150.png 150w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002FDante-Labs_Whole-Genome-Sequencing-512x512.png 512w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003C\u002Ffigure>\n\u003C\u002Fdiv>\n\n\n\u003Ctable style=\"width: 100%; border-collapse: collapse; background-color: #eee; border-top: 4px solid #444;\" cellpadding=\"10px\">\n\u003Ctbody>\n\u003Ctr>\n\u003Ctd style=\"width: 100%;\">\n\u003Cp>\u003Cstrong>At The Medical Futurist, we are building a community for making a bold vision about the future of healthcare reality today.\u003C\u002Fstrong>\u003C\u002Fp>\n\u003Ciframe loading=\"lazy\" width=\"560\" height=\"315\" src=\"https:\u002F\u002Fwww.youtube.com\u002Fembed\u002FFIbMejImnxs\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen=\"\">\u003C\u002Fiframe>\n\u003Cp>If you’d like to support this mission, we invite you to \u003Ca href=\"https:\u002F\u002Fwww.patreon.com\u002Fthemedicalfuturist\">join The Medical Futurist Patreon Community\u003C\u002Fa>. A community of empowered patients, future-oriented healthcare professionals, concerned health policymakers, sensible health tech developers, and enthusiastic medical students. If there were ever a time to join us, it is now. Every contribution, however big or small, powers our research and sustains our future.\u003C\u002Fp>\n\u003Cp>\u003Ca href=\"https:\u002F\u002Fwww.patreon.com\u002Fthemedicalfuturist\">\u003Cstrong style=\"background-color: #e71d3299; color: #000;\">Click here to support The Medical Futurist from as little as $3\u003C\u002Fstrong>\u003C\u002Fa> – it only takes a minute. Thank you.\u003C\u002Fp>\n\u003C\u002Ftd>\n\u003C\u002Ftr>\n\u003C\u002Ftbody>\n\u003C\u002Ftable>\n\u003Cp> \u003C\u002Fp>\n",false,{"rendered":22,"protected":20},"\u003Cp>Dante Labs sent me their Full DNA whole genome sequencing package, and I went through a roller-coaster of feelings: I was excited to know every secret of my DNA, but I was afraid of getting to know my hereditary cancer risks and worried what else I might find. As in my case, (scientific) curiosity usually overrides fear, I jumped into the unknown and I’m eager to share my results here.\u003C\u002Fp>\n",6,22404,"closed",true,"","standard",{"_acf_changed":20,"footnotes":27},[31,32,33],500,488,489,[35,36,37,38,39,40,41,42,43,44,45,46,47,48,49,50,51],289,1136,373,1137,382,1138,1139,196,655,212,1101,246,1102,271,1104,275,1135,[],[],[55,56,57,58,59,60,61,62,63,64,65,66,67,68,69,70,71,72,73,74],2063,2043,2065,2045,2067,2047,2049,1969,2051,1981,2053,2033,2055,2035,2057,2037,2059,2039,2061,2041,[76,14,77,78,79,80,81,82,83,84,85,86,87,88,89,90,91,92,93,94,95,96,97,98,99,100,101],"post-22360","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-biotechnology","category-genomics","category-personalized-medicine","tag-innovation","tag-genomic-testing","tag-research","tag-dante-labs","tag-science","tag-health-risks","tag-health-science","tag-data-2","tag-genome-sequencing","tag-dna","tag-genomic","tag-future","tag-genomic-data","tag-health","tag-genetic","tag-healthcare","tag-whole-genome-sequencing",{"id":24,"alt_text":103,"caption":27,"description":27,"media_type":104,"media_details":105,"post":5,"source_url":144},"TMF genome DNA genetic test human jump","image",{"width":106,"height":33,"file":107,"sizes":108,"image_meta":141},870,"2018\u002F11\u002F051_genomsequence_v2.png",{"medium":109,"large":115,"thumbnail":120,"medium_large":124,"large_old_512x288":125,"thumbnail_old_150x150":130,"medium_old_370x208":132,"medium_large_old_768x432":135,"large_old_512x288_old_512x288":138},{"file":110,"width":111,"height":112,"mime-type":113,"source_url":114},"051_genomsequence_v2-370x208.png",370,208,"image\u002Fpng","https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002F051_genomsequence_v2-370x208.png",{"file":116,"width":117,"height":118,"mime-type":113,"source_url":119},"051_genomsequence_v2-768x432.png",768,432,"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002F051_genomsequence_v2-768x432.png",{"file":121,"width":122,"height":122,"mime-type":113,"source_url":123},"051_genomsequence_v2-150x150.png",150,"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002F051_genomsequence_v2-150x150.png",{"file":116,"width":117,"height":118,"mime-type":113,"source_url":119},{"file":126,"width":127,"height":128,"mime-type":113,"source_url":129},"051_genomsequence_v2-512x288.png",512,288,"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002F051_genomsequence_v2-512x288.png",{"file":121,"width":131,"height":131,"mime-type":113,"source_url":123},"150",{"file":110,"width":133,"height":134,"mime-type":113,"source_url":114},"370","208",{"file":116,"width":136,"height":137,"mime-type":113,"source_url":119},"768","432",{"file":126,"width":139,"height":140,"mime-type":113,"source_url":129},"512","288",{"aperture":142,"credit":27,"camera":27,"caption":27,"created_timestamp":142,"copyright":27,"focal_length":142,"iso":142,"shutter_speed":142,"title":27,"orientation":142,"keywords":143},"0",[],"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F11\u002F051_genomsequence_v2.png",{"related_posts":20,"related_posts_footer":146,"cta_type":27,"cta_color":27,"subtitle":27,"related_books":20,"key_takeaways":150},[147,148,149],22156,14029,17644,[151,153],{"title":152},"\u003Cp>I got my genome sequences back in 2018 to learn about disease risks, medication sensitivities and maybe even more.\u003C\u002Fp>\n",{"title":154},"\u003Cp>Working with a genetic counselor, I could access a lot of data and draw meaningful conclusions from that to improve my lifestyle and health managemenet with the supervision of my primary care physician.\u003C\u002Fp>\n",{"yoast_wpseo_title":17,"yoast_wpseo_metadesc":156,"yoast_wpseo_canonical":15},"Dante Labs sent me their Full DNA whole genome sequencing package. Here's everything I learned from my whole genome sequencing report.",{"self":158,"collection":164,"about":167,"author":170,"replies":173,"version-history":176,"predecessor-version":180,"wp:featuredmedia":184,"wp:attachment":187,"wp:term":190,"curies":206},[159],{"href":160,"targetHints":161},"https:\u002F\u002Fapi.medicalfuturist.com\u002Fwp-json\u002Fwp\u002Fv2\u002Fposts\u002F22360",{"allow":162},[163],"GET",[165],{"href":166},"https:\u002F\u002Fapi.medicalfuturist.com\u002Fwp-json\u002Fwp\u002Fv2\u002Fposts",[168],{"href":169},"https:\u002F\u002Fapi.medicalfuturist.com\u002Fwp-json\u002Fwp\u002Fv2\u002Ftypes\u002Fpost",[171],{"embeddable":26,"href":172},"https:\u002F\u002Fapi.medicalfuturist.com\u002Fwp-json\u002Fwp\u002Fv2\u002Fusers\u002F6",[174],{"embeddable":26,"href":175},"https:\u002F\u002Fapi.medicalfuturist.com\u002Fwp-json\u002Fwp\u002Fv2\u002Fcomments?post=22360",[177],{"count":178,"href":179},23,"https:\u002F\u002Fapi.medicalfuturist.com\u002Fwp-json\u002Fwp\u002Fv2\u002Fposts\u002F22360\u002Frevisions",[181],{"id":182,"href":183},57261,"https:\u002F\u002Fapi.medicalfuturist.com\u002Fwp-json\u002Fwp\u002Fv2\u002Fposts\u002F22360\u002Frevisions\u002F57261",[185],{"embeddable":26,"href":186},"https:\u002F\u002Fapi.medicalfuturist.com\u002Fwp-json\u002Fwp\u002Fv2\u002Fmedia\u002F22404",[188],{"href":189},"https:\u002F\u002Fapi.medicalfuturist.com\u002Fwp-json\u002Fwp\u002Fv2\u002Fmedia?parent=22360",[191,194,197,200,203],{"taxonomy":192,"embeddable":26,"href":193},"category","https:\u002F\u002Fapi.medicalfuturist.com\u002Fwp-json\u002Fwp\u002Fv2\u002Fcategories?post=22360",{"taxonomy":195,"embeddable":26,"href":196},"post_tag","https:\u002F\u002Fapi.medicalfuturist.com\u002Fwp-json\u002Fwp\u002Fv2\u002Ftags?post=22360",{"taxonomy":198,"embeddable":26,"href":199},"project_category","https:\u002F\u002Fapi.medicalfuturist.com\u002Fwp-json\u002Fwp\u002Fv2\u002Fproject_category?post=22360",{"taxonomy":201,"embeddable":26,"href":202},"contact_email_category","https:\u002F\u002Fapi.medicalfuturist.com\u002Fwp-json\u002Fwp\u002Fv2\u002Fcontact_email_category?post=22360",{"taxonomy":204,"embeddable":26,"href":205},"yst_prominent_words","https:\u002F\u002Fapi.medicalfuturist.com\u002Fwp-json\u002Fwp\u002Fv2\u002Fyst_prominent_words?post=22360",[207],{"name":208,"href":209,"templated":26},"wp","https:\u002F\u002Fapi.w.org\u002F{rel}",[211],{"id":149,"date":212,"date_gmt":213,"guid":214,"modified":216,"modified_gmt":217,"slug":218,"status":13,"type":14,"link":219,"title":220,"content":222,"excerpt":224,"author":23,"featured_media":226,"comment_status":25,"ping_status":25,"sticky":20,"template":27,"format":28,"meta":227,"categories":228,"tags":230,"project_category":238,"contact_email_category":239,"yst_prominent_words":240,"class_list":249,"better_featured_image":259,"acf":289,"yoast_meta":298,"_links":301},"2018-04-11T06:15:48","2018-04-11T04:15:48",{"rendered":215},"http:\u002F\u002Fmedicalfuturist.com\u002F?p=17644","2022-05-25T17:40:11","2022-05-25T15:40:11","rise-in-population-genomics-local-government-in-india-will-use-blockchain-to-secure-genetic-data","https:\u002F\u002Fmedicalfuturist.com\u002Frise-in-population-genomics-local-government-in-india-will-use-blockchain-to-secure-genetic-data",{"rendered":221},"Rise in Population Genomics: Local Government in India Will Use Blockchain to Secure Genetic Data",{"rendered":223,"protected":20},"\n\u003Ctable style=\"width: 100%; border-collapse: collapse; background-color: #eee; border-top: 4px solid #444;\" cellpadding=\"5px\">\n\u003Ctbody>\n\u003Ctr>\n\u003Ctd style=\"width: 100%;\">\n\u003Cp style=\"color: #555;font-size: 12px;line-height: 14px\">THIS ARTICLE HAS NOT BEEN UPDATED SINCE 2018. THE INFORMATION SHARED IN THE ARTICLE WAS ACCURATE AT THE TIME OF ITS PUBLICATION, BUT IT MAY BE OUT OF DATE NOW. \u003Ca href=\"https:\u002F\u002Fmedicalfuturist.com\u002Fmagazine\">BROWSE OUR LATEST ARTICLES HERE\u003C\u002Fa>\u003C\u002Fp>\n\u003C\u002Ftd>\n\u003C\u002Ftr>\u003C\u002Ftbody>\u003C\u002Ftable>\n\n\n\n\u003Cp>Blockchain will secure the DNA database for 50 million citizens in the eighth-largest state in India. The government of Andhra Pradesh signed a Memorandum of Understanding with a German genomics and precision medicine start-up, Shivom, which announced to start the pilot project soon. The move falls in line with a trend for governments turning to population genomics, and at the same time securing the sensitive data through blockchain.\u003C\u002Fp>\n\n\n\n\u003C!--more-->\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>Andhra Pradesh, DNA, and blockchain\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp>Storing sensitive genetic information safely and securely is a big challenge. Shivom builds a genomic data-hub powered by blockchain technology. It aims to connect researchers with DNA data donors thus facilitating medical research and the healthcare industry.\u003C\u002Fp>\n\n\n\n\u003Cp>With regards to Andhra Pradesh, the start-up will first launch a trial to determine the viability of their technology for moving from a proactive to a preventive approach in medicine, and towards precision health. “Our partnership with Shivom explores the possibilities of providing an efficient way of diagnostic services to patients of Andhra Pradesh by maintaining the privacy of the individual data through blockchain technologies,” said J A Chowdary, IT Advisor to Chief Minister, Government of Andhra Pradesh.\u003C\u002Fp>\n\n\n\n\u003Cp>The local government in India is a pioneer in the utilization of the latest technologies, such as the blockchain, to make citizens’ lives better. It had already partnered with a \u003Ca href=\"https:\u002F\u002Fwww.coindesk.com\u002Fandhra-pradesh-partners-with-chromaway-to-develop-blockchain-land-registry\u002F\">Swedish start-up, ChromaWay on a land registry pilot\u003C\u002Fa> that uses blockchain to track the ownership of property. Early March 2018, the government of Andhra Pradesh \u003Ca href=\"https:\u002F\u002Fwww.thenewsminute.com\u002Farticle\u002Fap-govt-signs-mou-new-york-based-consensys-boost-blockchain-adoption-state-77507\">signed another MoU with a New York-based blockchain company, ConsenSys\u003C\u002Fa> to pilot use-cases in the areas of land titling, supply chain, identity platform or electronic health records.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image alignnone size-full wp-image-17645\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"580\" src=\"https:\u002F\u002F1712507217.rsc.cdn77.org\u002Fwp-content\u002Fuploads\u002F2018\u002F04\u002Fmapmygenome.jpg\" alt=\"population genomics\" class=\"wp-image-17645\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F04\u002Fmapmygenome.jpg 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F04\u002Fmapmygenome-768x512.jpg 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F04\u002Fmapmygenome-512x341.jpg 512w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F04\u002Fmapmygenome-375x250.jpg 375w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003Cfigcaption>Source: Mapmygenome India Ltd.\u003C\u002Ffigcaption>\u003C\u002Ffigure>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>Population genomics on the rise\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp>The example of Andhra Pradesh falls into line with the moves of other early-adopters on the path towards personalized medicine of scale. On 20 March 2018, \u003Ca href=\"https:\u002F\u002Ffuturism.com\u002Fgenetic-testing-estonia\u002F\">Estonia launched the first stage of a national state-sponsored genetic testing and information service\u003C\u002Fa> providing 100,000 of its 1.3 million residents with information on their genetic risk for certain diseases.\u003C\u002Fp>\n\n\n\n\u003Cp>Already in 2015, \u003Ca href=\"https:\u002F\u002Fwww.technologyreview.com\u002Fs\u002F536096\u002Fgenome-study-predicts-dna-of-the-whole-of-iceland\u002F\">MIT Review reported\u003C\u002Fa> that a genetics company in Iceland named DeCode Genetics collected full DNA sequences on 10,000 individuals. And since the population in Iceland totals around 320,000 citizens, and they are fairly closely related, Decode said it could extrapolate to accurately guess the DNA makeup of nearly the whole population of the country, including those who never participated in its studies.\u003C\u002Fp>\n\n\n\n\u003Cp>Many countries and communities will follow their examples soon. By 2025, between 100 million and 2 billion human genomes will have been sequenced, \u003Ca href=\"https:\u002F\u002Fwww.nature.com\u002Fnews\u002Fgenome-researchers-raise-alarm-over-big-data-1.17912#\u002Fb1\">researchers said\u003C\u002Fa>.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image alignnone size-full wp-image-17646\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"435\" src=\"https:\u002F\u002F1712507217.rsc.cdn77.org\u002Fwp-content\u002Fuploads\u002F2018\u002F04\u002Fnewsweek.jpg\" alt=\"\" class=\"wp-image-17646\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F04\u002Fnewsweek.jpg 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F04\u002Fnewsweek-768x384.jpg 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F04\u002Fnewsweek-512x256.jpg 512w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F04\u002Fnewsweek-458x229.jpg 458w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003Cfigcaption>A woman walks past a wall decorated with children’s portraits in downtown Reykjavik, Iceland in November 2008. Source: GUO LEI\u002FXINHUA\u002FEYEVINE\u002FREDUX\u003C\u002Ffigcaption>\u003C\u002Ffigure>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>Blockchain can keep DNA information safe – but what about access and purchase?\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp>That massive amount of data raises several serious questions and concerns. How could genetic information be kept safe? Who will have access to the data and how will that access be granted? Will big genomic data be monetized?\u003C\u002Fp>\n\n\n\n\u003Cp>Data privacy and security is of utmost importance in \u003Ca href=\"https:\u002F\u002Fwww.wired.com\u002Fstory\u002Fcambridge-analytica-private-facebook-messages\">the age of Cambridge Analytica and the Facebook data fiasco\u003C\u002Fa>, and \u003Ca href=\"https:\u002F\u002Fmedicalfuturist.com\u002Fwhat-the-hell-is-blockchain-what-does-it-mean-for-healthcare-and-pharma\u002F\">blockchain might be the technological response\u003C\u002Fa> to the worries. However, backdoors for breaching privacy should be kept closed. For example, Shivom announced that \u003Ca href=\"https:\u002F\u002Fqz.com\u002F1244824\u002Fandhra-pradesh-is-using-blockchain-to-collect-dna-data-of-50-million-citizens\u002F\">researchers and governments will be allowed to buy or access anonymous raw genomic data stored in the cloud\u003C\u002Fa>. So, who will get access and how? Who will buy and sell genetic information? Some companies, such as \u003Ca href=\"https:\u002F\u002Fimpactcee.com\u002F2018\u002F02\u002F21\u002Fnebula-genomics-will-help-you-monetise-your-dna\u002F\">Nebula Genomics, already propose users to sell their DNA: retain ownership and make a profit\u003C\u002Fa>. Moreover, what if people living in underdeveloped regions provide their samples having no control over them or not even knowing what happens to their data?\u003C\u002Fp>\n\n\n\n\u003Cp>These burning questions have to be addressed soon as the era of big genomic data is upon us and the overall goal should be to help people prevent diseases and live a satisfactory life based on their genetic information.\u003C\u002Fp>\n\n\n\n\u003Ctable style=\"width: 100%; border-collapse: collapse; background-color: #eee; border-top: 4px solid #444;\" cellpadding=\"10px\">\n\u003Ctbody>\n\u003Ctr>\n\u003Ctd style=\"width: 100%;\">\n\u003Cp>\u003Cstrong>At The Medical Futurist, we are building a community for making a bold vision about the future of healthcare reality today.\u003C\u002Fstrong>\u003C\u002Fp>\n\u003Ciframe loading=\"lazy\" width=\"560\" height=\"315\" src=\"https:\u002F\u002Fwww.youtube.com\u002Fembed\u002FFIbMejImnxs\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen=\"\">\u003C\u002Fiframe>\n\u003Cp>If you’d like to support this mission, we invite you to \u003Ca href=\"https:\u002F\u002Fwww.patreon.com\u002Fthemedicalfuturist\">join The Medical Futurist Patreon Community\u003C\u002Fa>. A community of empowered patients, future-oriented healthcare professionals, concerned health policymakers, sensible health tech developers, and enthusiastic medical students. If there were ever a time to join us, it is now. Every contribution, however big or small, powers our research and sustains our future.\u003C\u002Fp>\n\u003Cp>\u003Ca href=\"https:\u002F\u002Fwww.patreon.com\u002Fthemedicalfuturist\">\u003Cstrong style=\"background-color: #e71d3299; color: #000;\">Click here to support The Medical Futurist from as little as $3\u003C\u002Fstrong>\u003C\u002Fa> – it only takes a minute. Thank you.\u003C\u002Fp>\n\u003C\u002Ftd>\n\u003C\u002Ftr>\n\u003C\u002Ftbody>\n\u003C\u002Ftable>\n\u003Cp> \u003C\u002Fp>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Ca href=\"https:\u002F\u002Fthemedicalfuturist.us8.list-manage.com\u002Fsubscribe?u=5b42ebb547c75ff669a6572d3&id=efd6a3cd08\">\u003Cb>Subscribe To The Medical Futurist℠ Newsletter\u003C\u002Fb>\u003C\u002Fa>\u003C\u002Fh2>\n\n\n\n\u003Cul class=\"wp-block-list\">\u003Cli>News shaping the future of healthcare\u003C\u002Fli>\u003Cli>Advice on taking charge of your health\u003C\u002Fli>\u003Cli>Reviews of the latest health technology\u003C\u002Fli>\u003C\u002Ful>\n",{"rendered":225,"protected":20},"\u003Cp>Blockchain will secure the DNA database for 50 million citizens in the eighth-largest state in India. The government of Andhra Pradesh signed a Memorandum of Understanding with a German genomics and precision medicine start-up, Shivom, which announced to start the pilot project soon. The move falls in line with a trend for governments turning to population genomics, and at the same time securing the sensitive data through blockchain.\u003C\u002Fp>\n",17647,{"_acf_changed":20,"footnotes":27},[32,229],799,[231,232,48,50,233,43,44,46,234,235,236,237],261,262,608,864,259,865,260,[],[],[241,242,243,244,245,246,247,248],1729,1883,1973,1979,2917,2921,4507,1693,[250,14,77,78,79,80,81,83,251,252,253,98,100,254,93,94,96,255,256,257,258],"post-17644","category-security-privacy","tag-genome","tag-genomics","tag-precision-medicine","tag-predictive-health","tag-genetic-testing","tag-precision-health","tag-genetics",{"id":226,"alt_text":260,"caption":27,"description":27,"media_type":104,"media_details":261,"post":149,"source_url":288},"population genomics",{"width":106,"height":262,"file":263,"sizes":264,"image_meta":286},508,"2018\u002F04\u002F180326-blockchain.jpg",{"medium":265,"large":269,"thumbnail":273,"medium_large":276,"large_old_512x299":277,"medium_old_429x250":281},{"file":266,"width":111,"height":112,"mime-type":267,"source_url":268},"180326-blockchain-370x208.jpg","image\u002Fjpeg","https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F04\u002F180326-blockchain-370x208.jpg",{"file":270,"width":117,"height":271,"mime-type":267,"source_url":272},"180326-blockchain-768x448.jpg",448,"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F04\u002F180326-blockchain-768x448.jpg",{"file":274,"width":122,"height":122,"mime-type":267,"source_url":275},"180326-blockchain-150x150.jpg","https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F04\u002F180326-blockchain-150x150.jpg",{"file":270,"width":117,"height":271,"mime-type":267,"source_url":272},{"file":278,"width":127,"height":279,"mime-type":267,"source_url":280},"180326-blockchain-512x299.jpg",299,"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F04\u002F180326-blockchain-512x299.jpg",{"file":282,"width":283,"height":284,"mime-type":267,"source_url":285},"180326-blockchain-429x250.jpg",429,250,"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F04\u002F180326-blockchain-429x250.jpg",{"aperture":142,"credit":27,"camera":27,"caption":27,"created_timestamp":142,"copyright":27,"focal_length":142,"iso":142,"shutter_speed":142,"title":27,"orientation":142,"keywords":287},[],"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F04\u002F180326-blockchain.jpg",{"related_posts":290,"related_posts_footer":294,"cta_type":27,"cta_color":27,"subtitle":27,"related_books":20},[291,292,293],21392,21284,20749,[295,296,297],17773,17759,15120,{"yoast_wpseo_title":299,"yoast_wpseo_metadesc":300,"yoast_wpseo_canonical":219},"Rise in Population Genomics: Local Government in India Will Use Blockchain to Secure Genetic Data - The Medical Futurist","Blockchain will secure a DNA database for 50 million citizens in India. 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