[{"data":1,"prerenderedAt":488},["ShallowReactive",2],{"slug-crowdsourcing-in-digital-health":3},{"post":4,"relatedPosts":219,"relatedBooks":376},{"id":5,"date":6,"date_gmt":7,"guid":8,"modified":10,"modified_gmt":11,"slug":12,"status":13,"type":14,"link":15,"title":16,"content":18,"excerpt":21,"author":23,"featured_media":24,"comment_status":25,"ping_status":25,"sticky":26,"template":27,"format":28,"meta":29,"categories":30,"tags":38,"project_category":59,"contact_email_category":65,"yst_prominent_words":66,"class_list":81,"better_featured_image":120,"acf":154,"yoast_meta":163,"_links":166},32443,"2021-02-02T10:00:00","2021-02-02T09:00:00",{"rendered":9},"https:\u002F\u002Fmedicalfuturist.com\u002F?post_id=32443&#038;_wpnonce=c096b1bf2c&#038;status=auto-draft&#038;type=post","2021-02-15T23:21:51","2021-02-15T22:21:51","crowdsourcing-in-digital-health","publish","post","https:\u002F\u002Fmedicalfuturist.com\u002Fcrowdsourcing-in-digital-health",{"rendered":17},"Top 6 Crowdsourcing Examples In Digital Health",{"rendered":19,"protected":20},"\n\u003Cp>During your school years, you might have encountered several instances where your teacher laid out a task or asked a question, and asked you and your classmates to come up with an answer or solution. This “method” somewhat exemplifies crowdsourcing, albeit in analogue form. In essence, \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fdictionary.cambridge.org\u002Fdictionary\u002Fenglish\u002Fcrowdsourcing\" target=\"_blank\">the term refers to\u003C\u002Fa> the act of gathering information or input into a task from a large group of people; or simply, “\u003Cem>outsourcing work to the crowd\u003C\u002Fem>” as the \u003Cem>Wired \u003C\u002Fem>editors who \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fen.wikipedia.org\u002Fwiki\u002FCrowdsourcing\" target=\"_blank\">coined the term in 2005\u003C\u002Fa> described it.&nbsp;\u003C\u002Fp>\n\n\n\n\u003Cp>However, one must not confuse crowd\u003Cem>sourcing\u003C\u002Fem> with crowd\u003Cem>funding\u003C\u002Fem>. The latter involves raising relatively small amounts of funds from a large group of individuals to realise a project. It’s the method employed to fund campaigns on Kickstarter and Indiegogo; or GoFundMe, where there’s \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fmashable.com\u002Farticle\u002Fcrowdfunding-medical-bills-survey\u002F\" target=\"_blank\">a worrying trend in the U.S.\u003C\u002Fa> for people turning to crowdfunding to pay their medical bills.\u003C\u002Fp>\n\n\n\n\u003Cp>Getting back to crowdsourcing, while the term is relatively new, the practice has existed for longer. Nowadays, the term is associated with an online component even though it doesn’t necessarily have to involve the internet. Online, crowdsourcing models are \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.washingtonpost.com\u002Ftechnology\u002F2021\u002F01\u002F25\u002Ftwitter-birdwatch-misinformation\u002F\" target=\"_blank\">commonly associated\u003C\u002Fa> with services such as Wikipedia, Quora and Reddit. In healthcare, the practice experienced a slower adoption but with the rise of digital health technologies and the advent of the empowered patients, crowdsourcing stories keep sprouting.&nbsp;\u003C\u002Fp>\n\n\n\n\u003Cp>These stories portray how patients of the 21st century are taking matters into their own hands to address issues they face on a daily basis. For long, the ivory tower of medicine would not even remotely consider their input. But thanks to online tools and community support, they are proving that that ivory tower model is obsolete.\u003C\u002Fp>\n\n\n\n\u003Cp>In this article, we will look at some of the most promising examples of crowdsourcing in healthcare and digital health.\u003C\u002Fp>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>1. DIY artificial pancreas\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp>One of the prime examples of patients barging through the impenetrable ivory tower tightly controlled by the medical and pharma industries is that of diabetes. Diabetics, fed up with lagging regulations that kept medtech companies from introducing an artificial pancreas into the market, took matters into their own hands.\u003C\u002Fp>\n\n\n\n\u003Cp>It was Dana Lewis, a diabetes patient, and her husband who initiated the movement. Together, they \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fmedicalfuturist.com\u002Fliving-with-an-artificial-pancreas\u002F\" target=\"_blank\">hacked a homemade ‘artificial pancreas’\u003C\u002Fa> to help Dana manage her condition. After seeing it work well, they decided to spread their solution around. But with the obstacles that regulations laid ahead, they established the \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fopenaps.org\u002Fwhat-is-openaps\u002F\" target=\"_blank\">Open Artificial Pancreas System&nbsp; (OpenAPS) project\u003C\u002Fa>. This open source community shares the know-how and lends a helping hand to anyone interested in DIY-ing their own ‘artificial pancreas’.\u003C\u002Fp>\n\n\n\n\u003Cdiv class=\"wp-block-image\">\u003Cfigure class=\"aligncenter size-large\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"432\" src=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2019\u002F08\u002F071_artificial_pancreas-768x432.png\" alt=\"diabetes technology\" class=\"wp-image-24567\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2019\u002F08\u002F071_artificial_pancreas-768x432.png 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2019\u002F08\u002F071_artificial_pancreas-370x208.png 370w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2019\u002F08\u002F071_artificial_pancreas-1536x864.png 1536w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2019\u002F08\u002F071_artificial_pancreas-2048x1152.png 2048w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2019\u002F08\u002F071_artificial_pancreas.png 1920w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \u002F>\u003C\u002Ffigure>\u003C\u002Fdiv>\n\n\n\n\u003Cp>This initiative further led to discussion platforms like \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.healthline.com\u002Fdiabetesmine\" target=\"_blank\">DiabetesMine\u003C\u002Fa> and cloud-based solutions like \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.tidepool.org\u002F\" target=\"_blank\">Tidepool\u003C\u002Fa> for more accessible and actionable diabetes data. Following patients’ demands, the \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.bloomberg.com\u002Fnews\u002Farticles\u002F2016-09-28\u002Fartificial-pancreas-approved-by-fda-is-first-such-device-in-u-s\" target=\"_blank\">FDA approved\u003C\u002Fa> of the first artificial pancreas. But they were late to the party as they did so two years after the \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fmedicalfuturist.com\u002Fliving-with-an-artificial-pancreas\u002F\" target=\"_blank\">open source DIY artificial pancreas\u003C\u002Fa> had made its debut. By further embracing patients’ input, the FDA created its own \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.fda.gov\u002Fadvisory-committees\u002Fcommittees-and-meeting-materials\u002Fpatient-engagement-advisory-committee\" target=\"_blank\">patient engagement advisory board\u003C\u002Fa>.\u003C\u002Fp>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>2. The TikTok pill bottle for patients with Parkinson’s&nbsp;\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp>No, this is not a TikTok-branded medication bottle. Rather, it is one of the latest examples of crowdsourcing ideas with the help of social media. As one of its characteristic symptoms, patients with Parkinson’s exhibit uncontrollable hand tremors; even among those with the \u003Ca href=\"https:\u002F\u002Fwww.parkinson.org\u002FUnderstanding-Parkinsons\u002FWhat-is-Parkinsons\u002FYoung-Onset-Parkinsons\" target=\"_blank\" rel=\"noreferrer noopener\">Young Onset Parkinson’s disease\u003C\u002Fa> variant. Those with Parkinson’s experience daily struggles with fine actions others take for granted like buttoning shirts and tying shoelaces. This also includes picking up pills required for treating their condition.\u003C\u002Fp>\n\n\n\n\u003Cp>Athlete Jimmy Choi, who suffers from Parkinson’s, shared this struggle on his \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.tiktok.com\u002F@jcfoxninja?\" target=\"_blank\">TikTok page\u003C\u002Fa>. While browsing his ‘For You’ section on TikTok, a videographer Brian Alldridge saw Choi’s video. Touched by the struggle, he \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.theverge.com\u002F2021\u002F1\u002F23\u002F22244673\u002Fparkinsons-tiktok-crowdsourced-pill-bottle\" target=\"_blank\">decided to address this issue\u003C\u002Fa> that millions face worldwide. He designed a 3D-printable pill container with a rotating base to isolate an individual pill. This would direct the latter towards a tube within the container through which the pill can be taken “like a shot glass”. This would eliminate the need to dig into the container, a very challenging action for patients.\u003C\u002Fp>\n\n\n\n\u003Cdiv class=\"wp-block-image\">\u003Cfigure class=\"aligncenter size-large\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"512\" src=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2021\u002F01\u002Ftiktok-parkinsons-pill-bottle-768x512.jpg\" alt=\"\" class=\"wp-image-32445\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2021\u002F01\u002Ftiktok-parkinsons-pill-bottle-768x512.jpg 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2021\u002F01\u002Ftiktok-parkinsons-pill-bottle-1536x1024.jpg 1536w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2021\u002F01\u002Ftiktok-parkinsons-pill-bottle-2048x1365.jpg 2048w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2021\u002F01\u002Ftiktok-parkinsons-pill-bottle-scaled.jpg 1621w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \u002F>\u003Cfigcaption> One of Alldridge’s initial sketches for the pill container design. \u003Cbr>Source: https:\u002F\u002Fwww.theverge.com\u002F\u003C\u002Ffigcaption>\u003C\u002Ffigure>\u003C\u002Fdiv>\n\n\n\n\u003Cp>Since Alldridge didn’t have a 3D-printer himself to test his design, he shared it on TikTok to seek those who do and could give him some feedback. Overnight, his video received thousands of views and viewers did 3D-print his model. However, the pieces would not fit; nevertheless that did not falter the community to \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.theverge.com\u002F2021\u002F1\u002F23\u002F22244673\u002Fparkinsons-tiktok-crowdsourced-pill-bottle\" target=\"_blank\">fine tune the design and get it to function\u003C\u002Fa>. Several TikTok users are printing those functional containers and sending them to people. The 5.0 version of the 3D-printable model is now freely available to anyone to print and use.\u003C\u002Fp>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>3. Tracking COVID-19 vaccine locations\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp>On its website, \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.cdc.gov\u002Fcoronavirus\u002F2019-ncov\u002Fneed-extra-precautions\u002Folder-adults.html\" target=\"_blank\">the CDC writes that\u003C\u002Fa> “\u003Cem>the risk for severe illness with COVID-19 increases with age, with older adults at highest risk\u003C\u002Fem>.” However, with the ongoing \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fmedicalfuturist.com\u002Ftracking-covid-19-vaccinations\" target=\"_blank\">worldwide vaccination efforts\u003C\u002Fa> to limit those complications, this vulnerable demographic \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.latimes.com\u002Fcalifornia\u002Fnewsletter\u002F2021-01-19\u002Fcoronavirus-vaccine-covid-website-how-to-find-appointments-county-seniors-essential-california\" target=\"_blank\">is facing challenges to obtain relevant information\u003C\u002Fa> such as eligibility and appointment procedures.\u003C\u002Fp>\n\n\n\n\u003Cp>After Patrick McKenzie \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Ftwitter.com\u002Fpatio11\u002Fstatus\u002F1349577791537250310\" target=\"_blank\">tweeted the idea\u003C\u002Fa> of the need for a database with up-to-date information about COVID-19 vaccination in California, it picked up steam rapidly among other users. The following morning, they launched the  \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.vaccinateca.com\u002F\" target=\"_blank\">VaccinateCA\u003C\u002Fa> website. This volunteer-run effort aims to provide Californians with information about vaccine availability and the steps involved for getting one. Every day, \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.latimes.com\u002Fcalifornia\u002Fnewsletter\u002F2021-01-19\u002Fcoronavirus-vaccine-covid-website-how-to-find-appointments-county-seniors-essential-california\" target=\"_blank\">some 60 volunteers make calls\u003C\u002Fa> to about 500 healthcare facilities to find vaccine availability details. They subsequently update the website in real time.\u003C\u002Fp>\n\n\n\n\u003Cdiv class=\"wp-block-image\">\u003Cfigure class=\"aligncenter size-large\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"432\" src=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2021\u002F01\u002Ftmf_article_233-01-768x432.png\" alt=\"\" class=\"wp-image-32039\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2021\u002F01\u002Ftmf_article_233-01-768x432.png 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2021\u002F01\u002Ftmf_article_233-01-370x208.png 370w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2021\u002F01\u002Ftmf_article_233-01-1536x864.png 1536w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2021\u002F01\u002Ftmf_article_233-01.png 2000w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \u002F>\u003C\u002Ffigure>\u003C\u002Fdiv>\n\n\n\n\u003Cp>Carri Craver \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.kxan.com\u002Fnews\u002Fcoronavirus\u002Fnorth-texas-woman-launches-crowdsourcing-site-on-where-to-get-the-covid-19-vaccine\u002F\" target=\"_blank\">developed a similar crowdsourcing site for the state of Texas\u003C\u002Fa> after her 69-year old father hadn&#8217;t been able to find a vaccine. The website, \u003Ca href=\"https:\u002F\u002Fwww.covid19vaccinetx.com\u002F\">COVID19vaccineTX.com\u003C\u002Fa>, allows its users to share information about the availability of appointments and shots near them. The website is then updated with those details.\u003C\u002Fp>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>4. 3D-Printed Medical Equipments\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp>The pandemic laid bare the flawed supply chain of medical equipment. The lack of protective and medical ventilators, coupled with an overwhelming number of cases forced healthcare workers to ration resources. This effectively had them \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fmedicalfuturist.com\u002Fchoosing-between-life-and-death-during-covid-19-the-a-i-trolley-problem\u002F\" target=\"_blank\">choose between whom to let live or die\u003C\u002Fa>. This shortage prompted the 3D-printing community to band together and lend a helping hand to crowdsource medical supplies for hospitals.\u003C\u002Fp>\n\n\n\n\u003Cdiv class=\"wp-block-image\">\u003Cfigure class=\"aligncenter size-large\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"386\" src=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F01\u002F3d-printing-768x386.jpg\" alt=\"Amazon healthcare\" class=\"wp-image-17099\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F01\u002F3d-printing-768x386.jpg 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F01\u002F3d-printing-512x257.jpg 512w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F01\u002F3d-printing-458x230.jpg 458w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F01\u002F3d-printing.jpg 870w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \u002F>\u003Cfigcaption>Source: https:\u002F\u002Fwww.tctmagazine.com\u002F\u003C\u002Ffigcaption>\u003C\u002Ffigure>\u003C\u002Fdiv>\n\n\n\n\u003Cp>In Spain the \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.coronavirusmakers.org\u002F\" target=\"_blank\">Coronavirus Makers\u003C\u002Fa> group designed \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.forbes.com\u002Fsites\u002Fashoka\u002F2020\u002F03\u002F23\u002Frespirators-from-3d-printers-how-the-spanish-maker-community-fights-covid-19-from-their-living-rooms\u002Famp\u002F\" target=\"_blank\">open-sourced masks and even mechanical ventilators\u003C\u002Fa> for milder symptoms, which can be freely 3D-printed. While at the peak of the outbreak in Italy, the maker community \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.3dprintingmedia.network\u002Fcovid-19-3d-printed-valve-for-reanimation-device\u002F\" target=\"_blank\">created 3D-printable ventilator parts\u003C\u002Fa> that were in low supply available for free.\u003C\u002Fp>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>5. Gaming for a cause\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp>Gaming and healthcare might not initially seem to have much in common, but upon closer inspection, we can notice the overlaps. From \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fmedicalfuturist.com\u002F4-examples-of-merging-gaming-digital-health\u002F\" target=\"_blank\">helping to improve patient outcomes\u003C\u002Fa> to hinting at \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fmedicalfuturist.com\u002F3-things-medical-events-could-learn-from-video-game-streamers\u002F\" target=\"_blank\">the future of medical events\u003C\u002Fa>, there are several instances of merging gaming and healthcare; including crowdsourcing.\u003C\u002Fp>\n\n\n\n\u003Cp>\u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Ffold.it\u002F\" target=\"_blank\">Foldit\u003C\u002Fa> is one such example. This online computer game allows players without any prior biochemistry knowledge to compete and solve puzzles by folding protein structures so that they best fit to a target. The best solutions that players come up with can help better understand diseases like \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.huffpost.com\u002Fentry\u002Faids-protein-decoded-gamers_n_970113\" target=\"_blank\">AIDS\u003C\u002Fa> and find potential therapies. The not-for-profit company also released \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Ffold.it\u002Fportal\u002Fnode\u002F2010721\" target=\"_blank\">new puzzles adapted to the coronavirus\u003C\u002Fa> so that players can find promising antiviral proteins.\u003C\u002Fp>\n\n\n\n\u003Cdiv class=\"wp-block-image\">\u003Cfigure class=\"aligncenter size-large\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"642\" height=\"353\" src=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2020\u002F07\u002Fvideo-game-research.png\" alt=\"\" class=\"wp-image-29347\"\u002F>\u003Cfigcaption>Source: https:\u002F\u002Frapidlearninginstitute.com\u002F\u003C\u002Ffigcaption>\u003C\u002Ffigure>\u003C\u002Fdiv>\n\n\n\n\u003Cp>PC gamers with beefy gaming specs can also contribute to finding cures with \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Ffoldingathome.org\u002F\" target=\"_blank\">Folding@Home\u003C\u002Fa>. The latter allows anyone (even non-gamers without a high-end computer) to donate their unused GPU and CPU computing power. The aggregated, crowdsourced computational resources are used to run simulations so as to find potential drug candidates against conditions like cancer, ALS, Parkinson’s and, of course, \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Ffoldingathome.org\u002F2020\u002F02\u002F27\u002Ffoldinghome-takes-up-the-fight-against-covid-19-2019-ncov\u002F\" target=\"_blank\">COVID-19\u003C\u002Fa>. The organisation is now focusing its efforts on screening for potential drugs against COVID-19.\u003C\u002Fp>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>6. Evaluating risks and benefits of “immunity passports”\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp>Last year, we contemplated \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fmedicalfuturist.com\u002Fan-immunity-passport-after-covid-19-and-how-digital-health-can-support-it\u002F\" target=\"_blank\">the need for so-called immunity passports\u003C\u002Fa>; and this year, the U.K. is already \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.cityam.com\u002Fuk-to-trial-covid-19-vaccine-passports-with-new-app\u002F\" target=\"_blank\">considering trialing such an option\u003C\u002Fa> in the form of a smartphone app. In order to assess the risks and benefits of such a passport, U.K.-based Ada Lovelace Institute is crowdsourcing relevant evidence.\u003C\u002Fp>\n\n\n\n\u003Cp>The think tank \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.adalovelaceinstitute.org\u002Fnews\u002Fvaccine-passports-covid-status-apps-call-public-evidence\u002F\" target=\"_blank\">issued an open call\u003C\u002Fa> to “\u003Cem>public health officials, civil society organisations, researchers and interested citizens from across the world\u003C\u002Fem>” to share evidence about potential risks and benefits of vaccine passports and COVID status apps. That evidence will be \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fsociable.co\u002Ftechnology\u002Fuk-think-tank-crowdsource-evidence-digital-health-passport-risks-benefits\u002F\" target=\"_blank\">reviewed by an independent panel\u003C\u002Fa>, and the institute will subsequently publish a series of short reports. In April 2020, the British think tank \u003Ca rel=\"noreferrer noopener\" href=\"https:\u002F\u002Fwww.adalovelaceinstitute.org\u002Fnews\u002Fexit-through-the-app-store-uk-technology-transition-covid-19-crisis\u002F\" target=\"_blank\">issued a similar report\u003C\u002Fa> after gathering evidence about contact tracing.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image size-large\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"432\" src=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2020\u002F04\u002F161_tmf-01-768x432.png\" alt=\"Immunity passport\" class=\"wp-image-27755\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2020\u002F04\u002F161_tmf-01-768x432.png 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2020\u002F04\u002F161_tmf-01-370x208.png 370w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2020\u002F04\u002F161_tmf-01-1536x864.png 1536w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2020\u002F04\u002F161_tmf-01.png 1920w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \u002F>\u003C\u002Ffigure>\n\n\n\n\u003Cp>This concludes our list of crowdsourcing examples in digital health. But we will surely come across more and more examples in the near future. If you came across any other promising ones, do share them with us!\u003C\u002Fp>\n\n\n\n\u003Ctable style=\"width: 100%; border-collapse: collapse; background-color: #eee; border-top: 4px solid #444;\" cellpadding=\"10px\">\n\u003Ctbody>\n\u003Ctr>\n\u003Ctd style=\"width: 100%;\">\n\u003Cp>\u003Cstrong>At The Medical Futurist, we are building a community for making a bold vision about the future of healthcare reality today.\u003C\u002Fstrong>\u003C\u002Fp>\n\u003Cp>Dr. Bertalan Mesko, PhD, the Director of The Medical Futurist Institute, launched The Medical Futurist to help individuals, companies, and governments understand how digital health technologies bring healthcare into the 21st century.\u003C\u002Fp>\n\u003Cp style=\"padding-left: 40px;\">\u003Cem>&#8220;Digital health technologies empower patients to become proactive in their life; empower medical professionals to do their job being supported by advanced technologies, and companies and policymakers to make better decisions about their future.&#8221; &#8211; Dr. Bertalan Meskó\u003C\u002Fem>\u003C\u002Fp>\n\u003Cp>To support this transformation, Dr. Meskó and The Medical Futurist team is working relentlessly analyzing the latest trends in digital health and bringing insights to the 800,000+ readers and followers of our publications, along these principles:\u003C\u002Fp>\n\u003Cul>\n\u003Cli>\u003Cspan style=\"background-color: #e71d3299;\">\u003Cstrong>The Medical Futurist is a place to learn, not a place for advertising\u003C\u002Fstrong>\u003C\u002Fspan>. The Medical Futurist team is working to bring you unlimited access to reliable, neutral information, that is free from the influence of vendors and companies.\u003C\u002Fli>\n\u003Cli>\u003Cspan style=\"background-color: #e71d3299;\">\u003Cstrong>Unlike many others, we keep 99% of The Medical Futurist content open for all readers\u003C\u002Fstrong>\u003C\u002Fspan>, regardless of where they live or what they can afford to pay. We do this because we believe in information equality, where everyone deserves to read accurate news and thoughtful analysis.\u003C\u002Fli>\n\u003C\u002Ful>\n\u003Cp>For 2021, we commit to another year of high-impact reporting that helps people navigate the jungle of digital health and to see where it is heading. With no shareholders or billionaire owners, we set our own agenda and provide unbiased insights that are free from commercial and political influence.\u003C\u002Fp>\n\u003Cp>If you&#8217;d like to support this mission, we invite you to \u003Ca href=\"https:\u002F\u002Fwww.patreon.com\u002Fthemedicalfuturist\">join The Medical Futurist Patreon Community\u003C\u002Fa>. A community of empowered patients, future-oriented healthcare professionals, concerned health policymakers, sensible health tech developers, and enthusiastic medical students. If there were ever a time to join us, it is now. Every contribution, however big or small, powers our research and sustains our future.\u003C\u002Fp>\n\u003Cp>\u003Ca href=\"https:\u002F\u002Fwww.patreon.com\u002Fthemedicalfuturist\">\u003Cstrong style=\"background-color: #e71d3299; color: #000;\">Click here to support The Medical Futurist from as little as $3\u003C\u002Fstrong>\u003C\u002Fa> – it only takes a minute. Thank you.\u003C\u002Fp>\n\u003C\u002Ftd>\n\u003C\u002Ftr>\n\u003C\u002Ftbody>\n\u003C\u002Ftable>\n\u003Cp>&nbsp;\u003C\u002Fp>\n",false,{"rendered":22,"protected":20},"\u003Cp>During your school years, you might have encountered several instances where your teacher laid out a task or asked a question, and asked you and [&hellip;]\u003C\u002Fp>\n",16,32493,"closed",true,"","standard",{"_acf_changed":20,"footnotes":27},[31,32,33,34,35,36,37],6479,498,500,798,491,489,494,[39,40,41,42,43,44,45,46,47,48,49,50,51,52,53,54,55,56,57,58],192,5397,6573,236,5405,6575,6557,6559,3085,6561,6563,3683,533,6565,665,6567,6569,135,884,6571,[60,61,62,63,64],947,948,951,952,953,[],[67,68,69,70,71,72,73,74,75,76,77,78,79,80],1723,1883,2025,2405,1571,3471,1603,1617,3825,1619,3829,1631,4291,1683,[82,14,83,84,85,86,87,88,89,90,91,92,93,94,95,96,97,98,99,100,101,102,103,104,105,106,107,108,109,110,111,112,113,114,115,116,117,118,119],"post-32443","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-covid-19","category-3d-printing","category-biotechnology","category-digital-health-research","category-empowered-patients","category-personalized-medicine","category-telemedicine","tag-crowdsourcing-2","tag-gaming","tag-foldinghome","tag-fda-2","tag-foldit","tag-als","tag-tiktok","tag-jimmy-choi","tag-covid19","tag-3d","tag-diabetesmine","tag-immunity-passport","tag-artificial-pancreas","tag-tidepool","tag-3d-printed","tag-openaps","tag-vaccinateca","tag-aids","tag-vaccination","tag-coronavirus-makers","project_category-company","project_category-developers","project_category-patients","project_category-policy-makers","project_category-researchers",{"id":24,"alt_text":27,"caption":121,"description":122,"media_type":123,"media_details":124,"post":152,"source_url":153},"Crowdsourcing","Patients of the 21st century are taking matters into their own hands for example collecting funds for medical solutions.","image",{"width":125,"height":126,"file":127,"sizes":128,"image_meta":150},1920,1080,"2021\u002F02\u002Ftmf_article_239-01.png",{"medium":129,"large":135,"thumbnail":140,"medium_large":144,"1536x1536":145},{"file":130,"width":131,"height":132,"mime-type":133,"source_url":134},"tmf_article_239-01-370x208.png","370","208","image\u002Fpng","https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2021\u002F02\u002Ftmf_article_239-01-370x208.png",{"file":136,"width":137,"height":138,"mime-type":133,"source_url":139},"tmf_article_239-01-768x432.png","768","432","https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2021\u002F02\u002Ftmf_article_239-01-768x432.png",{"file":141,"width":142,"height":142,"mime-type":133,"source_url":143},"tmf_article_239-01-150x150.png","150","https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2021\u002F02\u002Ftmf_article_239-01-150x150.png",{"file":136,"width":137,"height":138,"mime-type":133,"source_url":139},{"file":146,"width":147,"height":148,"mime-type":133,"source_url":149},"tmf_article_239-01-1536x864.png","1536","864","https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2021\u002F02\u002Ftmf_article_239-01-1536x864.png",{"aperture":151,"credit":27,"camera":27,"caption":27,"created_timestamp":151,"copyright":27,"focal_length":151,"iso":151,"shutter_speed":151,"title":27,"orientation":151},"0",null,"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2021\u002F02\u002Ftmf_article_239-01.png",{"cta_type":155,"cta_color":27,"subtitle":27,"related_books":156,"related_posts_footer":159,"related_posts":20},"subscribe",[157,158],30419,24762,[160,161,162],32197,13329,17164,{"yoast_wpseo_title":164,"yoast_wpseo_metadesc":165,"yoast_wpseo_canonical":15},"Top 6 Crowdsourcing Examples In Digital Health - 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THE INFORMATION SHARED IN THE ARTICLE WAS ACCURATE AT THE TIME OF ITS PUBLICATION, BUT IT MAY BE OUT OF DATE NOW. \u003Ca href=\"https:\u002F\u002Fmedicalfuturist.com\u002Fmagazine\">BROWSE OUR LATEST ARTICLES HERE\u003C\u002Fa>\u003C\u002Fp>\n\u003C\u002Ftd>\n\u003C\u002Ftr>\u003C\u002Ftbody>\u003C\u002Ftable>\n\n\n\n\u003Cp>Digital Health is a cultural transformation, not just a set of new technologies. Written by e-Patient Dave deBronkart and Dr. Bertalan Meskó.\u003C\u002Fp>\n\n\n\n\u003C!--more-->\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>Preamble\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp>The doctor-patient relationship in healthcare is on the verge of a paradigm shift not seen for centuries – a paradigm shift in Thomas Kuhn’s sense in his 1962 classic, \u003Cem>The Structure of Scientific Revolutions\u003C\u002Fem>. Healthcare and medicine are fundamentally different from physical sciences, but Kuhn’s point about the sociological transition is universal. He mentioned that “perhaps science does not develop by the accumulation of individual discoveries and inventions”, but that “discovery commences with the awareness of anomaly, i.e., with the recognition that nature has somehow violated the paradigm-induced expectations that govern normal science”.\u003C\u002Fp>\n\n\n\n\u003Cp>We are at the point of detecting such anomalies in healthcare. For centuries the dominant paradigm has been that patients do not and cannot know what needs to be done (or more precisely cannot know anything worth knowing), yet in story after story, patients today are bringing real value to their own cases, thus “violating the paradigm-induced expectations that govern” the culture of medicine.\u003C\u002Fp>\n\n\n\n\u003Cp>Kuhn wrote that when too many anomalies accumulate, a field goes into crisis until a new paradigm is developed and accepted. We assert that this crisis stage has arrived, but as often happens, the causes of the anomalies are poorly understood, which leads to confusion and confused reporting. No new paradigm can arise, letting the field advance, while confusion reigns.\u003C\u002Fp>\n\n\n\n\u003Cp>We, therefore, issue this Digital Health Manifesto.\u003C\u002Fp>\n\n\n\n\u003Cp>We assert that the current anomalies are caused by two breakthroughs in the genesis and flow of information: access to knowledge, and digital tools which enable – \u003Cspan style=\"font-style: normal !msorm;\">\u003Cem>but do not\u003C\u002Fem>\u003C\u002Fspan>\u003Cem> alone\u003Cspan style=\"font-style: normal !msorm;\"> cause\u003C\u002Fspan>\u003C\u002Fem> – better health through situational awareness and behavior change.\u003C\u002Fp>\n\n\n\n\u003Cdiv class=\"wp-block-image wp-image-17167\">\u003Cfigure class=\"aligncenter\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"663\" height=\"510\" src=\"https:\u002F\u002F1712507217.rsc.cdn77.org\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fthomas-kuhn_history-of-science_guardian.jpg\" alt=\"Digital Health Manifesto\" class=\"wp-image-17167\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fthomas-kuhn_history-of-science_guardian.jpg 663w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fthomas-kuhn_history-of-science_guardian-512x394.jpg 512w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fthomas-kuhn_history-of-science_guardian-325x250.jpg 325w\" sizes=\"auto, (max-width: 663px) 100vw, 663px\" \u002F>\u003Cfigcaption>Illustration by Scott Garrett\u002FSource: The Guardian.\u003C\u002Ffigcaption>\u003C\u002Ffigure>\u003C\u002Fdiv>\n\n\n\n\u003Cp>Around the world, many express frustrations at healthcare’s array of challenges: the unsustainability of many national systems, the worldwide doctor and nurse shortages and the spiking numbers of “diseases of civilization” such as diabetes and obesity. Patients, medical professionals, care providers, pharma companies, technology start-ups, regulatory agencies and all other stakeholders in health and care perceive the winds of change. But digital health has produced mixed results, putting the field prematurely in the “trough of disillusionment” defined by \u003Ca href=\"https:\u002F\u002Fwww.gartner.com\u002Ftechnology\u002Fresearch\u002Fmethodologies\u002Fhype-cycle.jsp\">Gartner Group\u003C\u002Fa>.\u003C\u002Fp>\n\n\n\n\u003Cp>Players in the investment sector, who would like to participate in improvements, recognize the technological tsunami and rapid changes in other markets such as manufacturing, transportation, and energy, but are vexed by healthcare’s inability to adopt. That’s a clear sign of looming trouble: as Jack Welch said, “When the rate of change inside an institution is slower than the rate of change outside, the end is in sight.” He said it about corporations, but it’s just as true about whole industries: it’s a key mechanism by which a new technology can disrupt an entire industry.\u003C\u002Fp>\n\n\n\n\u003Cp>Medicine is too important to let this persist; too much is at stake for the future of humanity. Healthcare must re-optimize digitally, as other industries have. Yet observers are equally vexed by the wildly unpredictable results produced by digital health interventions.\u003C\u002Fp>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>In need of two perspectives\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp>\u003Ca href=\"http:\u002F\u002Fwww.epatientdave.com\u002F\">e-Patient Dave\u003C\u002Fa> and I are both keynote speakers, who have attended a thousand events.\u003C\u002Fp>\n\n\n\n\u003Cp>We represent two different perspectives: I’m a medical doctor and Dave is an empowered survivor of Stage IV cancer (\u003Ca href=\"http:\u002F\u002Ftwitter.com\u002Fepatientdave\">@ePatientDave\u003C\u002Fa>) with a high-tech background. As we are invited to conferences, debates, conversations all over the globe, we get to know plenty of stakeholders in different countries and various cultures with a wide range of issues. Since culture lives in conversations, there’s no better place to detect universal patterns than in hundreds of such events.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"582\" src=\"https:\u002F\u002F1712507217.rsc.cdn77.org\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fdave_and_berci.jpg\" alt=\"Digital Health Manifesto\" class=\"wp-image-17180\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fdave_and_berci.jpg 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fdave_and_berci-768x514.jpg 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fdave_and_berci-512x343.jpg 512w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fdave_and_berci-373x250.jpg 373w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003C\u002Ffigure>\n\n\n\n\u003Cp>We need to spot the disconnects in the thinking of influential stakeholders regarding the future, and create bridges and conceptualize the big picture to allow us into a better future. A future where old hierarchies tumble down, the paternalistic patient-doctor relationship is no longer needed and disruptive technologies enable the democratization of care by democratizing knowledge. A future where all these are in place due to cultural transformation \u003Cem>facilitated by\u003C\u002Fem> disruptive technologies. In short, a future where digital health has fulfilled its potential.\u003C\u002Fp>\n\n\n\n\u003Cp>This manifesto presents six declarations we believe are essential for correctly understanding what is and isn’t happening in digital health, hoping that it will help patients, physicians, and policymakers adopt new technologies easier.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"810\" height=\"495\" src=\"https:\u002F\u002F1712507217.rsc.cdn77.org\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002FDigital-Health-1.jpg\" alt=\"Digital Health Manifesto\" class=\"wp-image-17168\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002FDigital-Health-1.jpg 810w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002FDigital-Health-1-768x469.jpg 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002FDigital-Health-1-512x313.jpg 512w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002FDigital-Health-1-409x250.jpg 409w\" sizes=\"auto, (max-width: 810px) 100vw, 810px\" \u002F>\u003C\u002Ffigure>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>\u003Cspan style=\"font-weight: normal !msorm;\">Manifesto\u003C\u002Fspan>\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Ch3 class=\"wp-block-heading\">\u003Cstrong>1) It&#8217;s a cultural transformation – not just technology\u003C\u002Fstrong>\u003C\u002Fh3>\n\n\n\n\u003Cp>Despite popular belief, disruptive technologies cannot bring change on their own. Social media, artificial intelligence, robotics, 3D printing, virtual or augmented reality and health sensors have no effect whatsoever without a change in stakeholders’ attitude and the structure of the system.\u003C\u002Fp>\n\n\n\n\u003Cp>Disruptive technologies do, however, give participants a chance to redefine their roles. Modern doctors must stop saying “stay off the internet” and accept that their patients already \u003Cem>do \u003C\u002Fem>look things up online. As Dave says in speeches, “Googling is a sign of an engaged patient!” Doctors should extend their hard-earned expertise into the tools and channels where motivated patients live, or they risk becoming irrelevant – how ironic that would be. Recommend trustworthy sites and apps; be available (or have staff available) for questions and concerns; welcome the engagement.\u003C\u002Fp>\n\n\n\n\u003Cp>Another dimension arriving, but not always welcome, is the reality that patients are gaining increasing data at home, continuing the time-honored trends of home thermometers, home pregnancy tests, insulin test strips, CGMs etc. We can barely imagine the next step in which preliminary diagnoses and prescriptions may be possible. Virtual reality or augmented reality could bring doctors to patients’ homes (as telemedicine already does), which will be wonderful for the elderly or remote communities.\u003C\u002Fp>\n\n\n\n\u003Cp>But as long as the culture of medicine resists doing things differently, progress will be impeded. We must not construe shortfalls as the fault of technology if the culture hasn’t changed.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"489\" src=\"https:\u002F\u002F1712507217.rsc.cdn77.org\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fdoctor-patient-relationship.jpg\" alt=\"Digital Health Manifesto\" class=\"wp-image-17169\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fdoctor-patient-relationship.jpg 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fdoctor-patient-relationship-370x208.jpg 370w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fdoctor-patient-relationship-768x432.jpg 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fdoctor-patient-relationship-512x288.jpg 512w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fdoctor-patient-relationship-444x250.jpg 444w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003C\u002Ffigure>\n\n\n\n\u003Ch3 class=\"wp-block-heading\">\u003Cstrong>2) It&#8217;s about behavior change\u003C\u002Fstrong>\u003C\u002Fh3>\n\n\n\n\u003Cp>In his book \u003Cem>Let Patients Help\u003C\u002Fem>, Dave wrote that “Information alone doesn’t change behavior.”\u003C\u002Fp>\n\n\n\n\u003Cp>When he was diagnosed with pre-Type 2 diabetes, he bought a fitness wristband, and in the first six weeks his weight went up: in the absence of change, the data from his wrist did no good at all! Does this prove wristbands are useless? No: he got into the evidence-based Diabetes Prevention Program, where encouragement and coaching coaxed him into eating better (with the help of an app) and becoming more active, with months of coaching reinforcement and strong support at home. Ultimately he lost 40 pounds and became a runner in his sixties. Technology \u003Cem>enabled \u003C\u002Fem>behavior change, but technology alone was not sufficient.\u003C\u002Fp>\n\n\n\n\u003Cp>\u003Ca href=\"http:\u002F\u002Fwww.sciencedirect.com\u002Fscience\u002Farticle\u002Fpii\u002FS2213858716302844\">Researchers in Singapore carried out an interesting study\u003C\u002Fa> for measuring the effect of healthcare trackers on people’s motivations. The findings show that regardless of physical activity levels of participants before the study began, activity trackers alone or when combined with rewards designated for charity did not increase activity levels. In fact, nearly half of participants were no longer wearing their trackers by the six-month assessment period. Technology cannot substitute willpower and action, cannot change people from passive yesmen into proactive leaders if they don’t want to.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"575\" src=\"https:\u002F\u002F1712507217.rsc.cdn77.org\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fbehaviour-change.jpg\" alt=\"Digital Health Manifesto\" class=\"wp-image-17171\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fbehaviour-change.jpg 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fbehaviour-change-768x508.jpg 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fbehaviour-change-512x338.jpg 512w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fbehaviour-change-378x250.jpg 378w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003C\u002Ffigure>\n\n\n\n\u003Ch3 class=\"wp-block-heading\">\u003Cstrong>3) New information enables better performance and better questions\u003C\u002Fstrong>\u003C\u002Fh3>\n\n\n\n\u003Cp>Every digital technology is having an unprecedented, paradigm-altering effect on who can know what, which alters the possible future. Vast amounts of easily accessible knowledge mean people are informed better, which enables them to perform better – doctors as well as patients.\u003C\u002Fp>\n\n\n\n\u003Cp>It has to be acknowledged that with the rise of digital technologies and the dissemination of knowledge beyond the ivory tower, patients today have a lot more to offer to doctors than before. Very soon, the old paradigm “medicine is hard; people without medical training have nothing to offer” will be obsolete, but we must work actively to change it among both patients and clinicians: it prevents most patients from speaking up, asking questions, telling their doctors their opinions, feelings, and experiences – and even if they do, it prevents most doctors from recognizing the possible value and listening.\u003C\u002Fp>\n\n\n\n\u003Cp>As online communities with knowledge sharing and camaraderie urge more and more patients to speak up in their own cases and for their own interests, medical professionals will also have the push to perform better.\u003C\u002Fp>\n\n\n\n\u003Cp>It’s essential for digital health observers to recognize both these points: data truly \u003Cem>enables \u003C\u002Fem>new levels of performance, but the information alone won’t do it.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"580\" src=\"https:\u002F\u002F1712507217.rsc.cdn77.org\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fa-senior-doctor-listens-to-a-senior-female-patient.jpg\" alt=\"Digital Health Manifesto\" class=\"wp-image-17172\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fa-senior-doctor-listens-to-a-senior-female-patient.jpg 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fa-senior-doctor-listens-to-a-senior-female-patient-768x512.jpg 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fa-senior-doctor-listens-to-a-senior-female-patient-512x341.jpg 512w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fa-senior-doctor-listens-to-a-senior-female-patient-375x250.jpg 375w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003C\u002Ffigure>\n\n\n\n\u003Ch3 class=\"wp-block-heading\">\u003Cstrong>4) It’s about what works for the patient\u003C\u002Fstrong>\u003C\u002Fh3>\n\n\n\n\u003Cp>Any tool has value only in the context of an objective and a plan. Yet, no plan is of interest unless it suits the patient&#8217;s needs. Thus, an essential part of our cultural transformation is to shift the locus of control: we must shift from “doctor knows best” to “what are your goals for your care?”\u003C\u002Fp>\n\n\n\n\u003Cp>For a digital health tool to be attractive, it must serve a patient’s goals – \u003Cem>self-defined\u003C\u002Fem>, not imposed by authority – and the user\u002Fpatient must believe change is possible. News writers like to declare that digital health or behavioral interventions have failed, but we have never seen an article in which the patient’s activation level, motivation, or readiness for change has been reported too. This is a failure to diagnose before prescribing, as surely as if an antibiotic were prescribed without knowing which bacteria the patient has.\u003C\u002Fp>\n\n\n\n\u003Ch3 class=\"wp-block-heading\">\u003Cstrong>5) The future of care includes networked access to information and empathy\u003C\u002Fstrong>\u003C\u002Fh3>\n\n\n\n\u003Cp>Tech pioneer Vinton Cerf, often referred to as “the father of the Internet,” said that the online platform “is not merely a technology but a new way of cooperating, sharing, and caring”. The World Wide Web enables the interconnection of people and their knowledge, whether it’s about DIY cornices or insulin pumps. The availability of vast amounts of medical information demolished the old – yet persistent – attitude that medical knowledge resides only in the minds of the best doctors and is passed down through the hierarchy. Anyone with an internet connection can access relevant and useful medical information, can learn about their own case and ask questions. As with devices, the information doesn’t guarantee change but \u003Cem>enables \u003C\u002Fem>it. To deny this new possibility is to be a dinosaur. We must instead learn to use it, leverage it. (Remember what Welch said.)\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"550\" src=\"https:\u002F\u002F1712507217.rsc.cdn77.org\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fdigital-health-and-medicine.jpg\" alt=\"Digital Health Manifesto\" class=\"wp-image-17173\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fdigital-health-and-medicine.jpg 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fdigital-health-and-medicine-768x486.jpg 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fdigital-health-and-medicine-512x324.jpg 512w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Fdigital-health-and-medicine-395x250.jpg 395w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003C\u002Ffigure>\n\n\n\n\u003Cp>Some patients have even found the key to healing online. \u003Ca href=\"https:\u002F\u002Fwww.patientpower.info\u002Fbio\u002Fjanet-freeman-daily\">Janet Freeman-Daily\u003C\u002Fa>, a stage IV lung cancer patient whose doctors had run out of options, welcomed her contribution when she joined a patient community and discovered a little-known mutation that ultimately led to her achieving the coveted “no evidence of disease” status.\u003C\u002Fp>\n\n\n\n\u003Cp>Connectivity not only means access to knowledge but also to others with the same need. Patients can often feel isolated if nobody they know is going through the same journey, but they often find it in online patient communities. Health researcher Susannah Fox’s excellent video on peer-to-peer healthcare shows that \u003Ca href=\"http:\u002F\u002Fsusannahfox.com\u002Fvideo-peer-health-advice\u002F\">even a small community may have better health information\u003C\u002Fa> than most individuals and some doctors. Further, they can provide empathy and the feeling of belonging and understanding and are beyond a doctor’s sensible scope.\u003C\u002Fp>\n\n\n\n\u003Ch3 class=\"wp-block-heading\">\u003Cstrong>6) Think critically: read beyond the headlines.\u003C\u002Fstrong>\u003C\u002Fh3>\n\n\n\n\u003Cp>A real peril for observers and participants is inept reporting amplified by clickbait headlines.\u003C\u002Fp>\n\n\n\n\u003Cp>&nbsp;“Will fitness wearables soon diagnose by design, not by chance?” asked \u003Ca href=\"https:\u002F\u002Fwww.engadget.com\u002F2017\u002F09\u002F15\u002Fapple-watch-fitbit-heart-rate\u002F\">Engadget a while ago\u003C\u002Fa>. No, they won’t, we responded in our \u003Ca href=\"https:\u002F\u002Fwww.linkedin.com\u002Fpulse\u002Fengadget-reason-your-doctors-think-youre-idiot-mesk%C3%B3-md-phd\u002F\">LinkedIn piece\u003C\u002Fa>. Both of us – doctor and patient – got frustrated because the tech website’s writers revealed they don’t know the difference between a single symptom (with no context at all) and a medical diagnosis. Medicine is complicated! A doctor could be disciplined for such an ignorant mistake, and observers who read such things will be just as ill-informed and unable to do their work.\u003C\u002Fp>\n\n\n\n\u003Cfigure class=\"wp-block-image\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"489\" src=\"https:\u002F\u002F1712507217.rsc.cdn77.org\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Ffake-news-science-and-medicine.jpg\" alt=\"Digital Health Manifesto\" class=\"wp-image-17174\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Ffake-news-science-and-medicine.jpg 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Ffake-news-science-and-medicine-370x208.jpg 370w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Ffake-news-science-and-medicine-768x432.jpg 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Ffake-news-science-and-medicine-512x288.jpg 512w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002Ffake-news-science-and-medicine-445x250.jpg 445w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003C\u002Ffigure>\n\n\n\n\u003Cp>The root problem is that many digital health writers know plenty about apps but nothing about medicine. A secondary problem is a resulting sense that digital health is for idiots: imagine a trusting reader (you?) who goes to a doctor and mentions the article. The doctor concludes that e-health is stupid and the patient is naive.\u003C\u002Fp>\n\n\n\n\u003Cp>We must think critically.\u003C\u002Fp>\n\n\n\n\u003Cp>Engadget is not alone. The widely trusted business sites \u003Ca href=\"https:\u002F\u002Ftechcrunch.com\u002F2018\u002F01\u002F24\u002Fapple-wants-to-gather-all-your-medical-records-in-the-health-app\u002F\">TechCrunch\u003C\u002Fa> and \u003Ca href=\"http:\u002F\u002Fwww.businessinsider.com\u002Fapple-complete-medical-health-records-iphones-2018-1\">BusinessInsider\u003C\u002Fa> were wildly incorrect in their coverage of Apple’s January announcement that the Health app will be able to download a small set of simple measurements (blood pressure, blood tests etc.). That’s a tiny part of a patient’s medical record (as any savvy patient knows), but TechCrunch called it “all your medical records” and BusinessInsider enthused “complete medical records.” This not only makes patients and the digital community look like idiots; it blocks thinking professionals from contemplating what actually has been announced, so they can better understand what is newly possible.\u003C\u002Fp>\n\n\n\n\u003Cp>Health news sites and tech magazines have a lot of responsibility, so they should act accordingly. As for patients and doctors as news-consuming users themselves, they should be vigilant about online content and attempt to see through the filter of current reporting. Here is \u003Ca href=\"https:\u002F\u002Fmedicalfuturist.com\u002Fread-news-breakthrough-medical-technologies\u002F\">some help how to do that\u003C\u002Fa>!\u003C\u002Fp>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Cstrong>Conclusion\u003C\u002Fstrong>\u003C\u002Fh2>\n\n\n\n\u003Cp>No manifesto will by itself change a two-thousand-year-old system, any more than Martin Luther’s 95 theses did. Establishments die hard: 100 years ago, in 1918, Max Planck was awarded the Nobel Prize in physics, and in his \u003Cem>Scientific Autobiography \u003C\u002Fem>he talked about the adoption of change by any establishment:\u003C\u002Fp>\n\n\n\n\u003Cblockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\u003Cp style=\"text-align: justify;\">A new scientific truth does not win adoption by convincing its opponents and making them see the light, but because its opponents eventually die.\u003C\u002Fp>\u003C\u002Fblockquote>\n\n\n\n\u003Cp>A manifesto can, though, kindle new thinking among those who do see the light. Planck continued:\u003C\u002Fp>\n\n\n\n\u003Cblockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\u003Cp style=\"text-align: justify;\">… and a new generation comes up that is familiar with it.\u003C\u002Fp>\u003C\u002Fblockquote>\n\n\n\n\u003Cfigure class=\"wp-block-image\">\u003Cimg loading=\"lazy\" decoding=\"async\" width=\"870\" height=\"712\" src=\"https:\u002F\u002F1712507217.rsc.cdn77.org\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002F65716511_illustration-converted.jpg\" alt=\"Digital Health Manifesto\" class=\"wp-image-17175\" srcset=\"https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002F65716511_illustration-converted.jpg 870w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002F65716511_illustration-converted-768x629.jpg 768w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002F65716511_illustration-converted-512x419.jpg 512w, https:\u002F\u002Fcdn.medicalfuturist.com\u002Fwp-content\u002Fuploads\u002F2018\u002F02\u002F65716511_illustration-converted-306x250.jpg 306w\" sizes=\"auto, (max-width: 870px) 100vw, 870px\" \u002F>\u003C\u002Ffigure>\n\n\n\n\u003Cp>It is to these new thinkers (of any age) that we address this manifesto. There is much more to be said, but these declarations form the foundation without which nothing more could stand as we present it.\u003C\u002Fp>\n\n\n\n\u003Cp>It is essential that health and care achieve their potential, which cannot be done based on false understandings. This is why I asked Dave to contribute with his revolutionary ideas and vision. \u003Ca href=\"http:\u002F\u002Fwww.epatientdave.com\u002Fspeaker\u002F\">Whenever I saw him speak\u003C\u002Fa>, there was a standing ovation. If this article helps you see what Dave and I independently observed in our travels despite our completely different backgrounds, we will be grateful.\u003C\u002Fp>\n\n\n\n\u003Ctable style=\"width: 100%; border-collapse: collapse; background-color: #eee; border-top: 4px solid #444;\" cellpadding=\"10px\">\n\u003Ctbody>\n\u003Ctr>\n\u003Ctd style=\"width: 100%;\">\n\u003Cp>\u003Cstrong>At The Medical Futurist, we are building a community for making a bold vision about the future of healthcare reality today.\u003C\u002Fstrong>\u003C\u002Fp>\n\u003Ciframe loading=\"lazy\" width=\"560\" height=\"315\" src=\"https:\u002F\u002Fwww.youtube.com\u002Fembed\u002FFIbMejImnxs\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen=\"\">\u003C\u002Fiframe>\n\u003Cp>If you&#8217;d like to support this mission, we invite you to \u003Ca href=\"https:\u002F\u002Fwww.patreon.com\u002Fthemedicalfuturist\">join The Medical Futurist Patreon Community\u003C\u002Fa>. A community of empowered patients, future-oriented healthcare professionals, concerned health policymakers, sensible health tech developers, and enthusiastic medical students. If there were ever a time to join us, it is now. Every contribution, however big or small, powers our research and sustains our future.\u003C\u002Fp>\n\u003Cp>\u003Ca href=\"https:\u002F\u002Fwww.patreon.com\u002Fthemedicalfuturist\">\u003Cstrong style=\"background-color: #e71d3299; color: #000;\">Click here to support The Medical Futurist from as little as $3\u003C\u002Fstrong>\u003C\u002Fa> – it only takes a minute. Thank you.\u003C\u002Fp>\n\u003C\u002Ftd>\n\u003C\u002Ftr>\n\u003C\u002Ftbody>\n\u003C\u002Ftable>\n\u003Cp>&nbsp;\u003C\u002Fp>\n\n\n\n\u003Ch2 class=\"wp-block-heading\">\u003Ca href=\"https:\u002F\u002Fthemedicalfuturist.us8.list-manage.com\u002Fsubscribe?u=5b42ebb547c75ff669a6572d3&amp;id=efd6a3cd08\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\u002F\u002Fwww.google.com\u002Furl?q=https:\u002F\u002Fthemedicalfuturist.us8.list-manage.com\u002Fsubscribe?u%3D5b42ebb547c75ff669a6572d3%26id%3Defd6a3cd08&amp;source=gmail&amp;ust=1533905489195000&amp;usg=AFQjCNHUJqcWO3Q6NY-CAB79u_3w3GjHZQ\">\u003Cb>Subscribe To The Medical Futurist℠ Newsletter\u003C\u002Fb>\u003C\u002Fa>\u003C\u002Fh2>\n\n\n\n\u003Cul class=\"wp-block-list\">\u003Cli>News shaping the future of healthcare\u003C\u002Fli>\u003Cli>Advice on taking charge of your health\u003C\u002Fli>\u003Cli>Reviews of the latest health technology\u003C\u002Fli>\u003C\u002Ful>\n\n\n\n\u003Cp>\u003C\u002Fp>\n",{"rendered":234,"protected":20},"\u003Cp>Digital Health is a cultural transformation, not just a set of new technologies. 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