When I was preparing to the next lecture of the Internet in Medicine course, I asked my friends on Twitter whether they know about examples for community outreach by hospitals. Lucien Engelen shared a great example with me. The Radboud University Nijmegen Medical Centre (RUNMC) helps young people with cancer to develop their own community. More details here and in the video below.
Radboud University Nijmegen Medical Centre starts with the development of AYA4 (All information You’ve Asked For) : a unique online community for and by young people with cancer. Soon after the scoping process one of the FIRST steps was to have the Chief Listening Office of the REshape-team start listening to doctors, nurses, patients, parents and others in the informal care. So we as a University hospital facilitated the technique, supported and drove the innovation, but were the patients themselves who determined the content of the community and started filling. They create themselves a digital place where young people with cancer and their families can meet, exchange essential information, ask questions and share knowledge and feeling.